Innovation and Shared Decision-Making
Ethan M. Lindberg Foundation believes that the way doctors and parents communicate is critical, especially when discussing complex decisions about care that is innovative.
It’s our mission to empower families and doctors to work together to create a care plans and strategies that are tailored to each child’s need. Encouraging communication that defines goals and spells out options and possible outcomes is a gift to the families and medical team, regardless of outcome.
We are working with the Bi-Ventricular Team at Boston Children’s to craft family and medical team education that encourages shared decision-making between families and doctors. We are also developing tools that doctors can use as they speak to families about innovative treatment options.
Innovative Patient Care
When treating complex congenital heart defects, there is often not one clear path.
We are working with the Bi-Ventricular Team at Boston Children’s to develop an industry leading and comprehensive patient care initiative to improve outcomes and the patient, family and provider experience. This includes data aggregation and predictive analysis to guide decisions about complex care.