Twelve Years of Work.
A Lifetime of Impact.
The Ethan M. Lindberg Foundation completed its work at the end of 2026. For twelve years, we stood with families raising children with congenital heart disease and complex medical needs — in hospital rooms, in the long haul at home, and in the hardest moments families face.
We’ve been fueled by love, courage + calling.
Ethan Lindberg
Fueled by love, courage, and a calling to help others, we founded The Ethan Lindberg Foundation. After spending over 600 nights in the hospital with our son Ethan during his seven precious years, we encountered countless families navigating the toughest moments of their lives. We witnessed gaps in the systems meant to support families, and from our experience, The Ethan Lindberg Foundation was born. Our mission was clear: to make a profoundly challenging experience a little easier for families like ours.
We want to thank everyone who has been integral to this journey. Your support made all of this possible. What a gift it has been to love others through Ethan’s story.
What we’ve done:
Community Impact: Raised $4 million and devoted over 50,000 hours to our mission.
Housing Support: Provided over 3,000 nights of housing for families in hospitals, giving them one less thing to worry about during difficult times.
Financial Assistance: Distributed grants to families in 35 states and funded music therapy in the cardiac ICU at Boston Children’s to ease the burden and bring joy.
Cardiac Research: Funded research around the HLHS and single ventricle congenital heart disease, including innovative treatments for patients. We’ve created original research and published articles with our amazing research team on the financial, social, and emotional impact of having a child with complex congenital heart disease.
Family Advocacy: We’ve spoken at events, written articles, and advocated directly to medical teams and institutions on behalf of the needs of the families we serve.
Grief Support: We’ve supported grieving mothers through powerful weekend retreats that offered comfort, connection, and a path forward when they needed it most.
Heart Strong Message: Our founder, Jessica Lindberg’s message of resilience, embracing challenges, and transforming heartbreak into a force for good has resonated worldwide, inspiring others to live courageously and impact their communities.
Read more about the impact we’ve made here.
As the years continued, we noticed that what we’d learned along our journey had a lot to teach, not only to other families, but other communities as well. We created Play Heart Strong to support youth sports, Heart Strong for Healthcare to support doctors, nurses and healthcare workers and Live Heart Strong which took our message to wider audiences. Heart Strong will live on through it’s creator - Jessica Lindberg - in a new mission soon to be announced.
Though this work has been completed, we continue to envision and work to create a world where families facing life’s hardest challenges are supported and strengthened — where youth learn resilience early, and people are equipped to meet adversity with courage, compassion, and inner strength.
This has been an honor of a lifetime. To the future!
Our Vision. Our Work.
